Everyone so often I get a notification from the NHS App and an email saying I have a new message on Patient Knows Best. I follow the links and most times all it says: [NHS Provider] Updated Inf... See more
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Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Cowley Road, CB4 0WS, Cambridge, United Kingdom
No recent history of asking for reviews
This company hasn't invited customers recently, so reviews may not be representative
Replied to 58% of negative reviews
Typically replies within 2 weeks
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I was unable to open a letter from PKB despite changing my password, so I emailed them the problem.
I received a prompt reply that my problem would be looked into.
Within a couple of days they had solved the issue. I am very satisfied with their service.
Simple process with clear advice to get through the required info and process.
Dreadful website.
Can't register, can't log on, can't select the hospital I had treatment at,can't access anything.
Password reset requested multiple times, no emails received.
Just go round and round in circles.
Very poor as waiting on results for cancer treatment.
good to be in touch and have a quick response
Responded positively and gave advice how to solve problem
Then messaged again to make sure problem was resolved
Contacted PKB's Support regarding access issues, their agent Jo was quickly able to identify the issue, and provide a solution restoring full access to my health records.
Jo showed patience and understanding regarding the issue and demonstrated great knowledge of the system to be able to offer the support in a timely, polite and friendly manner.
Thank you Jo for your time!
If I could give zero stars I would do so. I must avoid stress and getting a text telling me to access patient knows best but not allowing me to do so - how do I join, sign in, etc it won’t let me. Is really bad I have several different problems so which clinical team has sent me a letter. This company should be terminated and fined
Had an issue logging in to Patients Know Best. Sent 1 email informing them of the situation and it was resolved within a couple of days. Keep informed by emails all the way through the process. Excellent service thank you.
1 star is far to generous for this bunch of clowns, keep sending me unsolicited e-mails about stuff I can’t access.
Very informative and kept me fully informed and updated.Reassuring!
This “Patients Know Best” lark is a nonsense. I have been sent a chart of complicated test data on me, which even with intelligence and good research skills I struggle to understand completely, and without medical training am likely to jump to incorrect conclusions.
A serious disease, stressed to the max that does not consider the patient’s mental health. The human condition is not supposed to communicate with apps, we are not supposed to live this way. How many years taken over a life span, downloading apps that are far too complex & actually don’t work? I have no idea the results of any medical reports because I cannot gain access! Great idea! How much has PKB cost that could have been spent on patient care?
Unable to log on and no one can help,
My first attempt to register my wife and I ended in failure as I had been trying to use a single email address for us both. I spent several hours trying to cancel and re-enter the system.
I decided to contact the PKB support team and the contact, Jo, was very helpful and sent a series of step by step instructions for each person. All fixed correctly
Excellent service.
It was great to get a quick response to my email enquiry. Tarra told me what she needed to solve my query and again she was quick to reply and explain.
What a fantastic service, bloods taken at doctors on Friday, results Saturday, explained and indepth, thank you.
Received an email from a random hospital from some distant part of the UK inviting me to register. The email claimed that this random hospital holds my data. It took 3 phone calls to establish that this is not a scam, but an email was sent to me in error. No respect for GDPR rules. This is concerning as they might hold some medical data.

Reply from Patients Know Best
Some time ago I got an invite to sign up and on paper this seemed a good idea. The reality is rather different.
The hospital trust had suggested I join and so I did. Initially there was the occasional update for me to look at but this was just a repeat of the letters I had received for appointments so duplication.
Having been refused a simple blood test by my GP, I suggested the practice look at Patientsknowbest. 'Never heard of it' both the receptionist and the doctor said.
Nothing much changed and every 6 months my test results were uploaded for me to look at. However, I was still getting a telephone appointment AND a letter telling me the same thing.
Checking the information today I find that 4 of the last 5 test results are missing. But no matter, I have letters with the results.
Since October last year I have had a number of other unrelated tests for a potentially serious condition. This has meant visits to two hospitals within the same trust, for x-rays, for bloods, to see a specialist and fitting recording equipment. There is NO RECORD OF ANY OF THIS TREATMENT.
So it seems most of the hospital trust and the GP either couldn't care less about this facility or have no idea it even exists despite the trust being signed up to it.
2026 is the digital age but I have to rely on a large, bulging paper file of documents containing all my medical history. Complete and utter shambles.

Reply from Patients Know Best
Initially had a problem but e mailed to get it rectified.The following day,my results were available except radiology.
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